Joseph is Home!



Joseph is Home!

The last three days were full of activity and uncertainty. Results of Joseph’s blood tests were going in the wrong direction for two days for him to be released to go home. There were also many preparations still to be made at home and we needed to be certified on safely maintaining Joseph’s line.

On Thursday it just did not seem possible that Joseph would be able to come home this weekend. His blood test results had gone down again. But later that morning one of the nurses asked me, “Were you able to get all the classes you needed to take care of Joseph’s line?” I told her that it did not look like things were going to come together for him to come home this weekend. She then said,” Well, I have certainly seen stranger things happen.”

That was when I realized my focus had shifted from what the Lord was doing to the limitations of what I thought was possible. Faith. That is what was needed.

Could I believe that the Lord could still bring Joseph home this week? Certainly He could if He chose to do so, but what would that require of us? We needed to be ready for the Lord’s action. So I called Kate and asked if she could come down for another lesson on Joseph’s line. She called friends at church and in a hour it was all arranged: two sets of people helping at short notice to watch the older boys and to help keep Ezra at the hospital so Kate could feed him when needed. Kate arrived and got trained.

Then we needed to get a number of things sorted out at our home and Kate’s father and brother David came down to do those things. I needed to get one more training in on Friday morning for Joseph’s line and the nurses created an impromptu class for me.

So by late Friday morning we had done or had in progress everything we needed to do to care for Joseph if he could come home. Now it was in the Lord’s hands.

When the doctors made the rounds on Friday they told me, “Joseph’s  blood test results are still low but they improved slightly. We have been discussing his situation and think that some of the other medicine that he is on is slowing down the response of his bone marrow. So we will remove that and send him home. He is so healthy it would really be better for him to be at home. If anything happens you can just bring him back.”

We were going home! And it had come about in the fullness of time, just when the Lord was ready. What a pity if we had not done our part in faith – we would still be at the hospital as we would not have been able to receive Joseph.

Once all the paperwork was done at the hospital Marie came to pick up Joseph and me. When we arrived home the boys were so excited. The first thing we did inside the house was introduce Joseph to Ezra. Joseph reached out to Ezra and began to pat his tummy. Both Elijah and Moses exclaimed “Joseph is a big brother. He is being kind to his little brother – Good boy Joseph!” Then Moses cried out “JOSEPH IS HOME!”

The first photo is Elijah and Moses giving Joseph some wee cars as a coming home gift. The next photo is the brothers walking off together to play and the last is Marie later sitting with all three boys on the sofa – enjoying the fruit of her labors – 35 days of  12 hour shifts caring for Joseph in the hospital.

Last night Joseph ate very well. It was really our first family meal since Ezra was born. It was, by the way, a donated meal from friends at church – one of more than 30 we have eaten this past 5 weeks.  After dinner the boys played and we all had a great night of sleep.

While it is wonderful to have Joseph home, he is still VERY much at risk of infection. We are monitoring Joseph’s temperature twice a day and it has been great. Then on Monday he will be fasting again for a visit to the surgical theater as an outpatient. He will have a chemo treatment in his spine and then a bone marrow sample will be taken for the very important MRD, Minimal Residual Disease, test. They will using this very advanced test to look at the genetic markers on Joseph’s leukemia cells. The test can detect 1 cell of leukemia in 50,000 bone marrow cells. If no leukemia is found in that test he will be officially classified as in remission and they will start the long series of treatments to keep him there over the next 3 years. If any leukemia cells are detected by the test then he would receive 14 weeks of more intense treatment to try to get him to remission. We would request prayer for Joseph’s MRD – that it will be accurate and our request is that he will be found to be in remission. 

We have seen a couple of examples of how much prayer has done for Joseph during his treatment. In talking to another parent about the lumbar puncture treatments that Joseph has now had several times, they told me it left their child very sore for over a day each time. In Joseph’s case, once he recovered from the anaesthesia he seemed to do very well. Then when we were getting Joseph’s supplies for home, we were given anti-nausia medicine. When I was given that I asked when we would give that to him and they replied that many children get sick after a dose of chemo. I said that Joseph had not really had that problem and they looked at his chart and said, “You’re right. He has been doing really well.” Just those two small things showed us again just how much grace is upon Joseph due to your prayers.

7 thoughts on “Joseph is Home!

  1. Bless you Father for the way you have gifted Joseph and his family with faith to believe and to wait expectantly for your grace, you beautiful grace! Thank you that Joseph is home! Thank you for your church that surrounds and uphold this family to the glory of your Son’s Name! Your glory continues to be seen Father in so many ways. I lift the MRD Test that Joseph will have soon and invite you Jesus to reign in Joseph’s bone marrow and body that indeed he would not only be in remission but be healed to the glory of the King of kings and Lord of lords, even Jesus our healer and redeemer. Thank you Father for Jesus who shows us your beauty and love by his blood shed on the cross for even wee boys like Joseph. Thank you!

  2. The saints the the Reformed Presbyterian Church of the North Hills (Pittsburgh, PA) were so delighted to receive this news and share in the amazement of what our Father can do. We prayed once again for protection from infection and for a wonderful transition home.

  3. We Praise the Lord with you for all that He has done! Joseph has the sweetest little spirit and it appears that his brothers do too. You are amazing parents. And Marie is unbelievable! We continue to believe that the Lord is the One fighting for Joseph and we join Him with our prayers. The Lord will rout every enemy from Joseph’s body. We give Him praise!

    Barb & Mick

  4. Praise to the Lord, the Almighty, the King of Creation! Oh my soul praise Him for HE is thy heath and salvation. Let the Amen, sound from your temple again. Gladly for aye, we adore thee.

    Thank you for reminding me to fix my eyes on Jesus. Faith has been a little weak this morning. You have encouraged me to gaze at the Savior and glance at the junk. Praying for sweet Joseph and you all.

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